Welcome to Sing & Play 4 Kids benefiting Boston Children's Hospital!

About Us

Why we're here?

CSWS epilepsy, also referred to as ESES, is an uncommon epilepsy syndrome in which children lose a wide range of developmental abilities, including language, motor skills, memory, and visuospatial skills.  In severe cases, the child may lose the ability to both walk and talk.  Rarely, Sudden Unexpected Death in Epilepsy (SUDEP) may occur. This syndrome occurs in school-aged children and in many children there is no known cause of epilepsy.  When children just lose language skills it is referred to as Landau Kleffner Syndrome.  Early identification and treatment is critical to preserve their neuropsychological development.   

Our Goal

We’re organizing Sing & Play 4 Kids to raise public awareness and research funds to help the kind doctors and researchers at Boston Children’s Hospital discover causes, cures, and treatments for ESES.  Every  dollar raised supports ESES research and puts us one step closer to a cure.

How can you help?

We would love your support.  Attend an event, make a donation, or help us spread the word by taking the Sing & Play 4 Kids Challenge benefiting Boston Children's Hospital ESES Research!  To donate, take the challenge, join our fundraising team or learn more click here now!


(Sing  & Play 4 Kids is a third party fundraiser benefiting Boston Children's Hospital.)

Joshua's journey

  • Joshua was a typically developing five year old when he slowly began losing developmental milestones,  started misbehaving in school,  had difficulties learning and  developed a severe stutter such that  it made  it hard for him to talk. His parents took him to Boston Children's Hospital for a second opinion where they learned that Joshua was having near continuous subclinical seizure activity during sleep i.e. seizures that are not visible to the naked eye.  
  • This rare EEG pattern  is known as Electrical Status Epilepticus During Sleep (ESES).   Children with ESES appear to be sleeping peacefully, but they suffer from subclinical seizures while they sleep.  If left untreated, the child may regress cognitively and demonstrate autism-like symptoms.  In severe cases, the child may lose the ability to both walk and talk. Rarely, Sudden Unexpected Death in Epilepsy (SUDEP) may occur.  


  • Joshua was fortunate, in that he responded well to the early intervention and treatment he received at Boston Children's Hospital and the ESES pattern disappeared.   Soon thereafter, his parents saw significant improvement in Joshua’s speech, behavior, and the autism-like symptoms resolved.   He learned to read, climb and ride a bike for the first time.  
  • He was doing so well that at only 6 years of age, Joshua with the help  of his Mother launched a door to door awareness campaign in his community to raise awareness of  ESES and advocate for kids like him suffering from this potentially devastating and difficult to detect epilepsy.  
  • Two goals of his campaign are to raise public awareness and promote early identification and treatment.  We believe that global collaboration is key to unlocking the mystery of this disease! 

  • Inspired by Joshua’s love of music from a very early age and the kind talented doctors at Boston Children's Hospital, we launched the Sing & Play 4 Kids Challenge benefiting Boston Children’s Hospital in December 2016. 
  • The goals of this challenge are to raise public awareness and research funds to help the dedicated doctors and researchers at Boston Children’s Hospital  find a cure and better treatments for children living with epilepsies associated with ESES e.g. CSWS Epilepsy and Landau-Kleffner Syndrome. 
  • Through this challenge we also hope to find passionate advocates, as well as dedicated individuals and families to help deliver this very important and urgent message to parents around the globe! We will leave no stone left unturned to find a cure for our kids and we would love for you join us!


meet Our team

You are not alone at Boston Children's Hospital!

Yes!  We are on our  way to reach our One Million Dollar Goal in 2018!

Accept the Challenge

#SingandPlay4Kids  #ESESResearch

Time is of the essence if we are going to save our children’s development!

Take the challenge today to give our kids a chance! It is easy as 1, 2, 3!

  • 1) Take a photo or video of you singing for the kids and and/or playing your favorite instrument .  You can also create a kind video message wishing them well;
  • 2)  Donate on this website or to Boston Children's Hospital/Sing & Play 4 Kids;
  • 3) Share your photo/video on social media using #SingandPlay4Kids and #ESESResearch. Tag 3 (or more!) friends to accept the challenge, post your own photo/video, donate, and tag others to join within 24 hours.  That's it!  


Donate Now to Sing & Play 4 Kids

Featured Story

Take the Sing & Play 4 Kids Challenge, send us a creative photo, slideshow or video and you may be our next featured story!   Thank you Shane!  You have the voice of an angel! 

Make check donations payable to Boston Children's Hospital Trust and mail to:

Boston Children's Hospital Trust

Community Fundraisers

Attn: Jessica Brandi

401 Park Drive, Suite 602

Boston, MA 02215,

(Please write Sing & Play 4 Kids/ESES Research on both the check and envelope!)

Thank You!

Your kind support means the world to us!

Please visit us again soon!

Contact Us

We would love to hear from you!

POC: Vinez Campbell 

Email: singandplay4kids@gmail.com

Hours

Monday - Friday: 9am - 5pm EST

Saturday & Sunday: Closed


CSWS Epilepsy & Landau-Kleffner Syndrome (ESES) Foundation, Inc.

P.O. Box 5751 Williamsburg, VA 23185 



To meet other families

Medical Disclaimer

  • The information provided on this page is for general information purposes only.   We are not medical professionals and cannot provide you with any medical advice.  Please direct all medical related questions to your physician. If you think you may have a medical emergency, call your doctor or 911 immediately.
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