CSWS epilepsy, also referred to as ESES, is an uncommon epilepsy syndrome in which children lose a wide range of developmental abilities, including language, motor skills, memory, and visuospatial skills. In severe cases, the child may lose the ability to both walk and talk. Rarely, Sudden Unexpected Death in Epilepsy (SUDEP) may occur. This syndrome occurs in school-aged children and in many children there is no known cause of epilepsy. When children just lose language skills it is referred to as Landau Kleffner Syndrome. Early identification and treatment is critical to preserve their neuropsychological development.
We’re organizing Sing & Play 4 Kids to raise public awareness and research funds to help the kind doctors and researchers at Boston Children’s Hospital discover causes, cures, and treatments for ESES. Every dollar raised supports ESES research and puts us one step closer to a cure.
We would love your support. Attend an event, make a donation, or help us spread the word by taking the Sing & Play 4 Kids Challenge benefiting Boston Children's Hospital ESES Research! To donate, take the challenge, join our fundraising team or learn more click here now!
(Sing & Play 4 Kids is a third party fundraiser benefiting Boston Children's Hospital.)
Yes! We are on our way to reach our One Million Dollar Goal in 2018!
Take the Sing & Play 4 Kids Challenge, send us a creative photo, slideshow or video and you may be our next featured story! Thank you Shane! You have the voice of an angel!
Boston Children's Hospital Trust
Attn: Jessica Brandi
401 Park Drive, Suite 602
Boston, MA 02215,
(Please write Sing & Play 4 Kids/ESES Research on both the check and envelope!)
Please visit us again soon!
POC: Vinez Campbell
Phone: (804) 832-2142
Monday - Friday: 9am - 5pm EST
Saturday & Sunday: Closed